Actual Experiences

A Hopeless Parent Struggling with an Autistic Child with Behavior Problems

I am so thankful that we were led to Dr. Schaller. First, I was looking to help my son, then after I did some reading on Lyme Disease I realized I better have myself tested as well. My son is eight years old and was diagnosed with "autism." He was very sick for the last year. I took him to a neurologist, neurosurgeon, endocrinologist, geneticist, ENT Physician, Defeat Autism Now! MD and his pediatrician several times and didn't get any answers.

I told them I thought he was screaming because he was in pain, and one response was "well he has autism". Others seemed to want to help but didn't appear to know how. It was such a relief to see Dr. Schaller as he knew what tests to run to get some answers. His passion for his work and helping patients is obvious. It was hard at first as his testing seemed like a whole new language to learn. I recommend reading through his web-site so the terms won't be quite so new during the appointments.

Then, there is a lot of blood work. I was shocked to see her pull out all those tubes (20-30) to fill, but I was relieved I drank so much (more than 40 oz) ahead of time because I felt completely fine afterwards. All the testing paid off as it finally showed an explanation as to why we were feeling the way we did. The first few weeks were a little rough as we adjusted treatments, but then I started having some days where I felt better than I had in years. My son has had similar reactions (except he would have out of control screaming sessions since he couldn't voice his discomfort with words), but around week 3 his occupational therapist said he was much more engaged and stayed on task better during their therapy sessions. You can also see improvement in his eyes. His eye contact is better with our family and his teachers. He also seems to have better vision, and to have brighter eyes.

He looks healthier and acts better. He is even tanning again. He's been so gray/pale for years and now his skin is looking healthier.

While we are still very early on in our recovery journey, we are finally optimistic about the future. Thank you Dr. Schaller!

Barbara McKinley Florida

A Sample of My New Babesia Supplement Comments
Schaller's Books Are A Blessing to Many, January 30, 2009
By BetterHealthGuy "BetterHealthGuy" (USA)

The world of Lyme disease is a world where information is often limited. It is a world where patients often feel helpless and alone. It is a world that very few people understand unless they live it on a daily basis. I personally thirst for information to help me better understand my illness and how to approach healing. Dr. Schaller is one of the few tirelessly working to provide information to those of us that really need it; to provide new options to those of us that require them. Having read the majority of his Lyme-related books, I always look forward to new ones and Babeisa Update 2009 does not disappoint.

A Candid, Cutting-Edge Book, Chock-Full of Information, January 29, 2009
By Connie Strasheim www.lymebytes.blogspot.com (Denver, Colorado)

As a babesia researcher and sufferer, I have witnessed how standardized treatments for this infection have failed. Furthermore, I have been frustrated by the failure of some within the medical community to recognize that current treatments for babesia are inadequate for getting rid of this infection in a large number of people. Because I have tried a number of such recommended treatments myself, and still test positive for babesia, I can attest to the fact of their inadequacy.

I applaud Dr. Schaller for tenaciously researching this infection, and spending what must have been countless hours to obtain the information found within the book. Without his work, we would have NO up-to-date books on babesia, and what a travesty this would be, as the ignorance surrounding babesia would be greater and more patients would likely remain without proper treatment. Indeed, the information presented here is cutting-edge and not found elsewhere.

The book is an easy read, written with refreshing candor and intrigue. It is chock-full of valuable information, and includes great photos, which are characteristic of Dr. Schaller's books.

I highly recommend this book for anyone with babesia, and especially for those for whom standardized treatments have failed. I would also consider it a vital guide for physicians that treat this important tick-borne infection.

Connie Strasheim — Author, "The Lyme Disease Survival Guide: Physical, Lifestyle and Emotional Strategies for Healing"

Babesia update 2009 A cause of Excess Weight,Migraines and Fatigue, January 29, 2009
By Lynn O'Keefe-Grabe (Chandler, Arizona)

Dr. Schaller's book is more than informative, it's life saving. It should be required reading for all physicians and medical students! It sheds new light on the complexity of Lyme disease and tick borne infections. Most doctors are completely missing the mark both with diagnosis and treatment. For years my son was sick and no one could figure out what was wrong with him. First they thought it was ADHD, then they suggested Asperger's and finally they settled on Tourettes. (All of these diagnoses ignored many of his physical symptoms). Not one doctor ever mentioned that all of his symptoms could be caused by tic borne infections! Finally, last year he was diagnosed with Babesia Microti and Lyme disease. He began treatment, and for a few months all of his symptoms disappeared. Believing him to be cured, our doctor stopped his Babesia medication. Within weeks all of his symptoms had returned. After reading Dr. Schaller's book I now understand that our son's treatment was inadequate and that he is probably also infected with Bartonella. This book has given our family new hope. I highly recommend it.

TOP LYME AND TICK-INFECTION BOOK OF YEAR! HE SAVED MY FAMILY, January 28, 2009
By Louise C. "Louise C." (Tampa, FL)

I have known this physician for many years, and he is a stunningly creative problem solver, reads frenetically, creates powerful solutions and new findings that are always ten years ahead of his time. I have been excited to sell some of his 25 books over the years, and amazed to sample his 27 peer-reviewed publications. One was even a cancer cure!

He loves treating folks with no solutions. I have also known many folks was chronic fatigue, fibromyalgia, arthritis and excess weight, who tried every common solution, and only had slight benefits.

There is a reason people come from all over the world to see Dr. Schaller. I sell some of them his books, and the next thing I know they write me months later and they are already on the path to a new life.

This is a man who knows all life is short, and healing is his deep passion. Medicine is not his job, it is his joy. He reads research books for fun. And best of all, he figures out medical troubles and can talk clearly and simply to non-science folks like me.

Thanks to "Dr. J," I have children and other relatives and friends who are not 6 feet under.

This material is so advanced I doubt anything can follow it for ten years. In fact, the only real Babesia books in recent years were all done by this physician. And such narrow and specific books are hardly to make money. These cost a fortune in time and money to write, and are only for a small group of smart educated readers, looking for new advanced help for fatigue, Lyme treatment failure and peculier weight gain that resists cure with modest diet and exercise.

And it is fascinating to see all the pearls he tosses out on different topics, partly related to this vastly under appreciated malaria-like infection. Just a few of these pearls were shared with my physicians in the past weeks and some were stunned. "Where did you read that!? That is quite a big finding." And I just point them to Dr. J's books.

Who would have thought my migranes were from Babesia — They were!!!, January 28, 2009
By M. Noll (Maplewood,NJ USA)

I have read alot of Dr.Schaller's books and I thought his first Babesia book was very informative but this book is absolutely phenomenal — it is an extraordinary book with an umlimited amount of cutting edge information. This is so ahead of it's time — I would recommmend it very highly. I didn't completely comprehend the severity of this disease until reading this book. Since being treated for Babesia my migraines are gone & so is my excess weight. I never would have thought the Babesia was causing those problems but the doctor said it was & since reading this book it understand more of what happened with this disease.

After years of just being shuffled from one doctor to another, Dr. Schaller found answers. He took the whole puzzle, put the pieces together and started toward a solution. One difference between Dr. Schaller and others is that he understands life's daily demands and challenges and gives his patients the tools to function while treating their illness. He makes adjustments in treatment and pays attention to how you are reacting to these adjustments. He has a tremendous scope of knowledge and is constantly learning. How you feel is important to him but a cure is also important. Dr. Schaller cares enough to make a difference in the quality of your life AND solve the problem. Solutions are out there and Dr. Schaller finds them.

J. Gordon
Houston, Texas

I received the Suboxone book. I want to thank you! The book is fascinating, especially for me, because I became addicted to oxycodone which was prescribed to me for 3 years due to a very painful injury. I have been taking Suboxone for a few months, prescribed by a "Suboxone Doctor", but had many questions that this book is clearing up for me. Recently, I had to go to a regular doctor for an allergic reaction to hair dye, and I was ashamed to tell him I was on Suboxone. I'm even embarrassed to pick up the prescription at the pharmacy. I see the look the pharmacists give me, even though I don't look "bummy" or act like a "low life". This book is helping me come to terms with that. Though I can't change the way other people feel, I certainly am coming to realize, through the help of this book, that I am NOT bad for needing Suboxone.

Dear Dr. Schaller,

I want to tell you why I recommend you to so many people. Please share this with individuals who do not know you.

After looking at your very informative web site with free articles my eyes were opened to so many different things I had never heard, and I became curious about you. Then after hearing so many good things from your other patients, I had to check you out myself. I have to admit I was not expecting much relief from my problems, because I had already seen many specialists and internists who did not help me, or listen to me or try to find the underlying cause of my troubles.

It is obvious to me that you are a passionate learner and intense researcher who cares deeply about finding cures to a wide range of illnesses. When I mentioned things that you had not heard of, it was clear you promptly began researching some options to diagnose me, and also contacted different fellow scholars from all around the world to learn new ways to heal me. I never had a doctor do research for ME. I have heard of doctors doing research for drug companies for money, but this is hardly what you do—you research for your precious patients to find the real causes of suffering.

You are truly interested in my ongoing progress and are willing to offer convenient phone assistance. You also offer 24/7 emergency coverage to me for sudden troubles and I never have to talk to medical staff who do not know me.

I know also that you could make more money seeing many patients in an hour and talking insurance. I know medical mills offer better income. But you offer full hour intakes to really listen and understand people.

I am amazed at your wide range of knowledge which is something I have never seen in other respected physicians before. Your knowledge is obviously beyond basic medical school and residency training. I know of no physician who knows so much about so many things, and is willing to publish them for others. You obviously are willing to search for cures and deep causes, and not merely offer "Band-Aid" drugs impulsively.

Your intake laboratory evaluations are so advanced, that I felt like I was being evaluated for the first time. Your special lab evaluations found credible and important things missed in simple 5 tube blood evaluations that I had in the past. It is surprising to me how you have been able to work it out, so that my testing is done by a wide range of top labs—you try to send each individualized test to the best lab, and are not so naive to feel one large national lab is the best at all tests.

Perhaps most of all, I love the fact you listen and get down on the floor with my children and care for me and them deeply. As a father I do not trust doctors to treat my children, but I definite trust you. We are not merely numbers or time slots—we are REAL people with a real doctor who cares. This is why I trust you to care for my children and have full trust in you. They are improving markedly since you started treating them. Thanks so much!

With Sincerely and Best Regards,

Michael Taborski
New York

Dear Dr. Schaller,

You helped me when no one else knew what was wrong with me, and for that I'll be eternally grateful. You were able to search out the causes of my suffering with your extensive labs and sharp mind. Thanks for getting me the help I needed, and getting me on the right track. I appreciate all that you've done.

I feel much better than when I first saw you, and I am excited that I finally know what is wrong with me and I am slowly improving. It is amazing how many respected physicians missed the causes of my suffering.

Thanks for everything.

Richard Darlington

Dr. Schaller is a brilliant, compassionate, man whose research directly gave our family and friends the key to solving our undiagnosed illnesses. Since writing my first testimonial a month ago, I have witnessed the ripple effect in Connecticut from Dr. Schaller's work. Dr. Schaller is directly responsible for restoring the quality of life to my family and has restored the quality of life and saved lives of those he has never even met. Our initial group of 8 people, who had mysterious symptoms whose doctors could not find a diagnosis, has been growing in numbers.

In the fall of 2006, eight friends and family members had similar symptoms of illness, which our doctors were unable to diagnose. As a group, we compared our symptoms. Seven of us had strep, four had sudden food intolerances and/or anaphylaxis, some had shooting pains, muscle pains, twitching, swelling at joints, a sudden difficulty in breathing, chest pains, sweats, intermittent fevers, chills, nausea, fatigue, inflammation (I had a sedimentation rate that doubled in a month) and some of us had high Eosinophils. Many doctors helped to narrow the possible causes of our illnesses by giving us labs, which helped give clues as to the causes of our illnesses, and many doctors devoted lots of time trying to help us. While the combined efforts of the adults in the group, the State Department of Health, and the efforts of our dedicated doctors helped us close in on the cause of our symptoms and eliminate some diseases, it was the work of Doctor Schaller that ultimately gave us the key as to the cause of our illnesses.

After expressing our concerns about a mysterious illness to the State Department of Health in Connecticut in the fall of 2006, it was suggested to us that our group look into Ehrlichiosis and Babesiosis as a possible cause. As a result of this suggestion, I asked many times to be tested for various tick-borne diseases. I kept coming up negative on all tick-borne illnesses. However, the more I read about tick-borne illnesses, much from Dr. Schaller's web site, and the more I learned about the symptoms of Babesia, the more I thought that Babesia could still be a possibility, in spite of negative test results. I soon discovered that Dr. Schaller was writing a book about Babesia (released in November of 2006) Just on the chance that this book might shed some more light on things, since by this time many of us noticed that we had the symptoms of Babesia, but came up negative on tests, I ordered the book. After reading Dr. Schaller's book, I was even more convinced that Babesia was a possibility, especially after reading about the difficulties that can arise when testing.

I also didn't follow what is considered a normal route for contracting Babesia by most....I never had a flu, but I did have a sore throat in the middle of the night (that was gone by morning), muscle aches, cramps, shooting pains, twitching, swollen knees, hip pain, air hunger, and ultimately intermittent fevers and sweats. Dr. Schaller painted a clearer picture of what Babesia infections can look like in his book, which is based on an enormous amount of research, and I fit. I came out positive for Babesia and Bartonella on a lab that uses a special stain to find it, and now that I am starting to get better, positive Lyme bands have showed up in my lab testing and I have been diagnosed with Lyme. I was too sick to fight the Lyme until I started to clear the Babesia and in fact 5 Lyme tests came out negative prior to my going on medication for the Babesia because my body was too sick to fight the Lyme and produce antibodies until recently. I am much better at this point. Dr. Schaller is now my son's and mother's doctor for tick-borne illness. More than half of our family and friends with these mysterious symptoms have now tested positive for tick-borne illnesses and the rest are still testing. We are fairly certain that more will be added to this list Babesia came out positive in most of us who were tested using new CLIA approved blood smears, recommended by Dr. Schaller, which allow both Babesia and Bartonella to be seen clearly.

I have watched our numbers grow as people we know or have met, who have had similar symptoms, went undiagnosed. A month ago, I spoke with a VP of an insurance company who was gravely ill with undiagnosed Babesia She was about to be hospitalized as the doctors she had been to did not know the cause of her illness. She had been bitten by something, developed a rash and had a flu-like illness about 14 days after being bitten. She, as did I, came up negative for Lyme, most likely because she was too ill to fight it, as I was. Her labs didn't look too terribly off (neither did mine) and her doctors did not know what the cause of her illness was. She was given 4 weeks of doxycycline, as was I, because it looked like Lyme, even though she came up negative for Lyme (as I did). She barely made any improvement for doxycycline and neither had I. I shared with her the information I had learned from Dr. Schaller. She bought his book on Babesia, using an overnight shipment, and was tested for Babesia. When she came out positive, her sister called me in tears of joy for finally having a diagnosis. Now on medication and for the first time in months, this woman has had a few sound nights sleeping and some good mornings and she is making progress improving her health, where prior to this, there were no good days or nights. She has sent me thank you's for sharing what I knew, but we all know that Dr. Schaller is the one to thank (although, I didn't mind getting the bouquet of flowers that arrived today!)

We are so grateful for Dr. Schaller's work and the education that he gives freely on his web site to those searching to find an answer to their illnesses. It is so obvious how much Dr Schaller cares about helping people who are ill. His office staff is also amazing. Dr Schaller gives of himself first to help others get well and is a person who shows great compassion, and has been even known to forgive significant debts when someone has had financial difficulties. At this point, three months into proper treatment of Babesia, I am 90% better. Four months ago, I was wondering if I was going to end up disabled. None of the symptoms I described to Dr. Schaller were foreign to him. When I told Dr. Schaller that my son and I both had shooting pains, which included at times a finger or toe or the side of our head, not only did he explain what it was, but he knew right away how to go about fixing the problem.

Thank you so much, Dr. Schaller, for directly educating the people who are desperately searching for answers! As a teacher, it is wonderful to see someone who thinks for himself, finds the answers, and doesn't just go by what he was taught medical school. Above all, thank you for my son and his friends, the children in our group, who deserve to have to have their health and enjoy their childhoods.

July 2008:UPDATE: I am requesting that Dr. Schaller add this important update to my testimonial. I learned from Dr. Schaller's research that when one is infected with Babesia, Bartonella, and Lyme that it can overwhelm the immune system and make the labs negative because the body can be too sick to fight the infections and produce the antibodies. I learned that once treating the co-infections that Lyme bands might start to show up and I learned it before it happened to me. I have almost monthly labs showing precisely this progression. A month after treating Babesia, my Elisa for Lyme was equivocal, then Lyme bands started to show and once clearing Babesia I had an IgM (present and not past) positive Western Blot on Quest labs, 11 months after first becoming infected. When I shared this with some of the 28 doctors that our group of people had seen prior to finding Dr. Schaller there was interest and curiosity because this is certainly not something doctors know and some wondered if it was an anomaly. I learned that my labs would progress this way before it did, so I was obviously not unique. Then, my son progressed the same way. He treated Babesia and Bartonella and then a positive IgM Western Blot came up for Lyme on Quest labs....after 2 years of illness! He had had eosinophilia for a year, as high as 37, which has now come down to 17 after finally starting to treat Lyme. He NEVER tested positive for IgM Lyme until he cleared the co-infections and could fight the Lyme and produce the antibodies to make the tests positive, and we only tested positive for Babesia and Bartonella on a research lab. So in other words, we looked normal on the normal labs given to the public and had not a research lab found our co-infections, I would no doubt be disabled and diagnosed with chronic fatigue or fibromyalgia right now. This is huge and could be the answer for many suffering with chronic fatigue and fibromyalgia. I believe that my son's and my lab progressions show the missing link between Lyme and co-infections and many who have fibromyalgia and chronic fatigue. At this point, I am actively working on getting this information out to the general public.

In addition, the recent tick testing done by Eva Sapi at the University of New Haven in Connecticut supports the threat to the public: Ticks collected in 2003 in Southern Connecticut: 20% Lyme, 30% Bartonella, and 34% babesia. Ticks collected in 2007 at playgrounds, parks, and school grounds to evaluate the threat to children: 60% Lyme so far and the co-infections are not yet done, but if they tripled in 4 years like Lyme did then we are at epidemic proportions. I certainly keep coming across people with many of our symptoms, 3 in the past 2 weeks whose doctors did not know what they had.

Dr. Schaller's books on Babesia and Bartonella show information not known to the vast majority of the medical community and he shares his own work and observations and amazingly compiles the important research from thousands of studies into these works. Thank you again Dr. Schaller....you have my highest respect and gratitude! You found the needle in the hay stack. You are clearly a doctor, genius, and researcher, who is many, many, years ahead of his time.

My children's future lives are better because Dr. Schaller helped fix their Mom: me. I was overwhelmed with chronic late stage lyme and after 3 years and four MD's, I finally found Dr. Schaller and my life changed for the better within months.

Thank you!
S.K.

Dear Dr. Schaller,

Thank you for such a positive doctor's visit in Tampa, Florida last month.

For the past 15 years I have been going to numerous doctors and specialists to diagnose my illness with no results. You have done it in less than a month.

My long range goal with your guidance is to follow whatever protocol is needed for Bartonella, Lyme and Babesia. I now have hope I will start feeling well again.

I have a lot of faith and trust in you, and I would not hesitate to refer others to you.

Sincerely,
Maria Florento
Italy

Mold, ADD, Body Pain, Arthritis, Severe Headaches, Fatigue and More

Over the last two years at least ten doctors sent me to about seven specialists for my medical troubles. All wanted to do surgeries to fix my neck and my hands which were swollen and very painful. I also had severe headaches, dizziness and arthritis like symptoms. After meeting all these physicians I was confused and demoralized. I just felt my problem was not a simple surgery or a simple medication since I seemed to have a number of new illnesses. I was about to give up.

Then I found Dr. Schaller's main web site. I called his office and his staff were excellent in helping me get started. They spent a long time on the phone with me and returned calls quickly. I had the sense they had time for me—that was special.

Once I met Dr. J., he diagnosed me very quickly, almost at a glance, but said that to be careful we needed to run some tests. He found a number of infections, some mold biotoxins, hormone abnormalities, excess inflammation and many other things. He was able to link these things together to show I did not have 20 problems but a limited number of issues, and 3-5 positive labs each confirmed some specific illness. Then it was an unusual experience to have my problems discussed in some of Dr. Schaller's many books, research publications or hundreds of free articles. I have never been given so much information on my health. Thankfully, the reading is optional.

When I arrived at his office my joints and muscles were killing me. I was severely fatigued. My swelling and pain causes were pin pointed in less than a week. In the few months that he's been my doctor, I have improved tremendously without surgeries. He IS the most amazing doctor I have ever known. In my eyes, he saved my life. He is a very kind, caring, intelligent doctor, who is so far ahead of times. I would fly around the world to see him if need be. I can honestly say I have complete and total faith in him. Also, his support staff is excellent, too.

On another note, I was diagnosed ADD years ago and had brain fog for at least a year and Doc Schaller found that these symptoms were part of his diagnostic findings. Under his care, these symptoms are improving rapidly. Before Dr. J. started treating me I would not have been able to keep my thoughts together enough to even tell you about him.

Now, as you can see from what I've written that he's taken care of that, too.

He IS a God send.

Mary Kennedy Knott